IC Disease

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There have been varying statistics for the number of people with Interstitial Cystitis. The last “official” report I found stated that in 1999, the National Institute of Health (NIH) estimated that IC affected approximately 750,000. That was almost 10 years ago, so that number would be significantly higher by now. There has been other research […]

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Urinary Tract Infections (UTI) have similar symptoms to IC Disease.  What is weird in my case is that every year from the time I was a teenager up through my diagnosis of IC Disease, I would have a UTI or bladder infection once or twice a year.  I have actually had so many UTIs that […]

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Endometriosis is a condition where tissue similar to the lining of the uterus (the endometrial stroma and glands), which should only be located inside the uterus, is found elsewhere in the body. Endometriosis can be found anywhere in the pelvic region or cavity: the ovaries, the fallopian tubes, the pelvic sidewall, cesarean-section scars, laparoscopy scars, […]

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This is a great video to watch on incontinence and it debunks many of the myths out there surrounding this often embarrassing symptom. I know from personal experience that incontinence is common among women with IC Disease but up to 50% of all women experience incontinence at least […]

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Vulvodynia is a chronic disorder that, described by the International Society for the Study of Vulvovaginal Disease as “chronic vulvar discomfort or pain, characterized by burning, stinging, irritation or rawness of the female genitalia.” The name vulvodynia describes the main symptom of the illness - “pain of the vulva”.
Like Interstitial Cystitis, the cause of vulvodynia […]

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Thank God times are changing for IC patients and the illness is starting to be more understood.  But even though advances have been made, there are still a lot of women being misdiagnosed by physicians due to their lack of knowledge on IC Disease.  Lack of knowledge isn’t the only reason that IC Disease may […]

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About a month ago my son started riding his bike without training wheels so he naturally wants to ride further than in our driveway.  I thought the exercise would do me some good so I went and bought a bike and we started riding in a new development behind our house that has very little traffic. 
I surprised […]

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With chronic illnesses like IC Disease that are hard to understand at both the patient and medical professional level, it is hard to know what methods are really going to work and which ones will do more harm than good.
I had read a good while ago an article about one doctor, Dr, Walt Stoll, who […]

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Interstitial Cystitis can be an illness that can be hard to research for new patients because there are not an extreme amount of resources available on the Internet.  Through my own personal research, I have found some different sites that have been a great means of support and a powerful resource for the latest and […]

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