IC Disease

Life with Interstitial Cystitis, Vulvodynia, Incontinence, & Other Bladder Conditions

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Jan 19 2009

Alone with Chronic Illness

Published by ff at 10:37 pm under Coping Edit This

Do you ever feel like you are alone with your chronic illness?  Do you feel like even with support from family and friends that you are still fighting a war by yourself? As often as people say they “understand what you are going thronugh” there is no way they can unless they walk a mile in your shoes.

My husband is very supportive of me but it is a strain on our marriage and relationship at times because I am just too physically drained from my illnesses and feel so miserable that I can’t even focus on a conversation he is trying to have with me. I will also try and hurry him up at times when he is talking because all I can think about is how bad my head hurts and how his talking is just making the pain worse.

It used to be that I would try and explain my actions and symptoms so that he would understand but I don’t even bother anymore. It doesn’t seem to matter.

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