IC Disease

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Feb 13 2009

Web Research for IC Disease, Fibromyalgia and ME/CFS

Published by ff at 4:00 am under Fibromyalgia, IC Disease, IC Research, ME/CFS, Pain Edit This

Of all places to find research and study information on chronic illnesses, I never expected to find anything on Craigslist!  The website, PROCLAIM, is seeking IC Disease, Fibromyalgia, chronic pain and Chronic Fatigue Syndrome patients to take part in a year long survey that will take place via the Internet.   This survey will study the effectiveness of alternative medicine and the interactions among stress and coping, pain, and treatment outcomes.

The PROCLAIM survey, which stands for Patient-Reported Outcomes from Complementary, Alternative, and Integrative Medicine, was developed under a grant to UCLA researchers from the National Center for Complementary and Alternative Medicine.

If you would like to enroll in this year-long study, follow these directions:

  • Go to the PROCLAIM website at http://www.proclaim.org
  • Register as a new user
  • Select the clinic name (Craiglist)
  • Read and sign the consent form
  • After you sign the form with your email address, you can begin to answer the first in a series of questionnaires. The system will send you email reminders at the time of each scheduled follow-up for one year.

For further information about PROCAIM, please contact:

Deborah Ackerman, Ph.D.
Department of Epidemiology
UCLA School of Public Health
Email: Deborah.Ackerman@ucla.edu

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