Posted in IC Disease on Sep 3rd, 2008 Edit | No Comments »
No two IC patients are the same and it has recently been reported that there are different subsets or “phenotypes” when it comes to IC Disease. Patients will have different combinations of symptoms, different pain levels,etc. Researchers Dan Shoskes and Ray Rackley (both of the Cleveland Clinic), J. Curtis Nickel (Queens Univ) and MA Pontari […]
Posted in Coping, IC Disease, Pain on Sep 1st, 2008 Edit | No Comments »
Dealing with the pain of a chronic illness like IC Disease can be extremely difficult. While I have somehow learned how to deal with pain, I have still not figured out a way to deal with the agonizing fatigue of CFS. One thing I have learned the hard way from having both illnesses is that […]
Posted in Coping, IC Disease on Aug 29th, 2008 Edit | No Comments »
I used to get frustrated whenever someone would make an ignorant or stupid comment to me about IC Disease or one of the other chronic illnesses I suffer from. Do you ever notice how someone who has no idea what it’s like living with a chronic illness seems to have all the answers and thinks […]
Posted in IC Diet, IC Disease, IC Friendly Recipes on Aug 28th, 2008 Edit | No Comments »
I found another great IC Disease friendly recipe that is a great pasta side dish - Fettuccine Alfredo. If you try this recipe, let me know what you think!
IC Friendly Fettuccine Alfredo
12 ounces fettuccine
1 cup evaporated skim milk
1/2 cup half and half
1 1/2 cups grated fresh Parmesan cheese
2 tablespoons butter, cut into small pieces
2 tablespoons […]
Posted in Coping, IC Disease on Aug 27th, 2008 Edit | 1 Comment »
One of the first coping mechanisms someone with a chronic illness like Interstitial Cystitis has to develop thick skin. Why? Because you are going to find that most people don’t get it, never will get it, and will assume that their backache, headache, or whatever is worse than what you are going through. How can […]
Posted in Fibromyalgia, IC Disease, Pain on Aug 26th, 2008 Edit | 3 Comments »
September is Pain Awareness Month and the National Fibromyalgia Association is trying to get the word out to everyone who suffers from chronic illnesses and pain disorders like IC Disease, Fibromyalgia and other diseases that cause chronic pain. One of the best things that we can do as patients is to help spread the word […]
Posted in IC Disease on Aug 24th, 2008 Edit | No Comments »
What a woman does after having sexual intercourse can affect how bad her IC Disease symptoms flare. As I have mentioned in my other posts on sex & IC Disease (please refer to Part 1, Part 2, Part 3 & Part 4 if you haven’t already read them), women will usually find their IC Disease […]
Posted in Clinical Trials, IC Disease, Treatments on Aug 22nd, 2008 Edit | No Comments »
Stella Pharmaceuticals in Canada has released some promising new information on a recent clinical trial of a drug called Uracyst®. The controlled clinical study was done through Watson Pharmaceuticals, a United States licensee of Stella Pharmaceuticals.
This study was a multi-centre, randomized, double blind, evaluation of the efficacy and safety of Uracyst versus placebo in patients […]
Posted in IC Disease, Treatments on Aug 21st, 2008 Edit | 2 Comments »
There may be hope on the way for the many Interstitial Cystitis patients out there. A new drug has been developed by a urologic surgeon and researcher, Lowell Parsons, M.D. the University of California, San Diego Medical Center.
“What our team has identified is an experimental drug therapy that can provide pain relief to patients within […]
Posted in IC Disease on Aug 19th, 2008 Edit | 1 Comment »
As I have discussed in the previous posts on this Sex & IC Disease Series, sexual intercourse with your spouse can become very painful and your sex life can go down the toilet. But couples need to remember that there is more to intimacy than just having sex. Focus on intimacy and other ways to […]
